Thursday, December 4, 2014

First Day at CTCA

We were supposed to go over to Cancer Treatment Center of America next week, but since Rudy is having so many drug interaction issues, we were able to have the appointment moved up.




Today (December 4th) was so full that I hardly know where to begin.  I guess I'll just go in chronological order.

We had our first appointment at Cancer Treatment Center of America.  Rudy and I got to CTCA early so we sat in the lobby and just took it in.  It's like a huge swanky hotel.  It was very busy - tons of people going here and there.  The wild thing - every single person we saw (patients and workers) was smiling.  I'm not exaggerating.  Ask Linda and Nancy.  It continued thru the day - every person we met was positive and happy and enthusiastic.  I really felt like we were in an alternate universe.

Rudy met with 5 people (or maybe more)  today and each one asked more questions than anyone we've met with so far.  They gathered lots of history - Rudy's history, his immediate family and extended family.  They were thorough.  

They were also organized.  OMG!  I have a DELUXE binder with everything I need to know and everything is organized with tabs and card holder pages and more.  If I want to look something up, I'll be able to find it easily.

Everyone we met said if we have questions, call them.  I have most everyone's number.  AND we can call over there 24/7.  If Rudy has trouble on a weekend, we won't be in a random emergency room being seen by someone who doesn't have access to his records.  Everything Rudy needs in regards to his health will be taken care of in this one facility.

We had a tour of the infusion room.  It's not one big room with all the patients.  There are large individual private rooms with TVs.  And Rudy can have guests.  They also have a nice porch so if someone gets tired of being cooped up inside, they can relax outside.




The whole facility felt more like a hotel than a medical facility.  

The cafeteria food was very good.  95-98% organic.  Much of it local grown.  http://www.180degreefarm.org/
This farm also sells produce at the hospital - market style - on Tuesdays.  This family has a child who was diagnosed with cancer at age 4 and they did a 180 degree change in their lifestyle and eating (hence the farm name).  Their child is now 12 and fine.  Apparently, the family really knows their stuff about fighting cancer with food and is very willing to share.

I am always a little nervous eating out.  I can't be sure what people have done to the foods that I may not be able to tolerate.  You'd think salads would be safe, but many places dip their lettuces in a solution to keep the leaves looking fresh longer.  Also, having dressing out is a big risk.  I took a gamble today and was just fine.  YAY!!!!!!!!!!!!!   Now, I won't have to pack my lunch on long days.    That'll be so nice.

I know I must be leaving stuff out.  The bottom line - we were all bowled over and feel like we're in very good hands.

Once home, we had something sad to deal with.  Our very old dog (17 or 18 years old), Lulu, had to be put down today.  She had a stroke overnight.  When we got up this morning, her feet were turning under and she was having a very hard time staying upright.   My sweet dad went with me to the vet. Lulu had been diagnosed with an aggressive form of leukemia and told she would likely only live another month or two.  That diagnosis was three years ago.  She lived a good long life, so we're trying to focus on that.

Late this afternoon, after Rudy took a nice nap, he wanted to go for a spin in his new Challenger.  I went along and boy, was that fun.  I've never been one to care much about cars as  long as they were safe and reliable, but I have to say, it was really fun riding around in this one.  Rudy made sure to test the power a few times.  It definitely has way more get-up-and-go than anyone would need.  I felt myself being thrown back in my seat on several occasions (and Rudy never broke the speed limit).   

So that was our day.  

We'll be back over at CTCA for more meetings tomorrow.

Wednesday, December 3, 2014

Rash and Medrol - Sick Again

Rudy has a rash on legs, arms, torso – This started Friday, Nov 28 or Saturday 29th.




By Monday, Dec 1st, the rash is getting worse.  Tried several creams, Benadryl, aloe vera, Eucerin, Aveeno bath...   Nothing is working. Other than rash, he’s feeling pretty good.  A little weak, but decent.



Tues, Dec 2 at 9:30 - 2 week appt with Anne (nurse at Dr Assikis).  She saw rash and prescribed steroids - Methylprednisolone Tablets (Medrol), 4mg dosepak.  He has a 5 day "dosepak" of the Medrol.   The first 2 days are 6 pills, the next 3 days are 3 pills each.  Also – OTC Pepcid AC and Claritin.  

Rudy took all of day 1 meds (as Anne instructed) starting around noon. Rudy felt good all day.  Was able to be a bit active all day – after dr appt, went to Target, Honey Baked ham.  Went home, took a nap, then went back out and picked up new car.  


Last night he could not sleep!   Had bad night sweats – 3 or 4 times.
This am he took the before breakfast dose and things went downhill pretty fast.  He's been throwing up all morning.  We've put the nausea ear patch back on and he's rubbed the nausea cream on his wrists.  He's trying to sip gatorade and forcing toast or crackers down.


Apparently nausea is a common side effect of Medrol.  So they give it to a man who is obviously prone to nausea?????  *&^%$#@!

I have contacted our "nurse navigator" at CTCA and they are trying to see if there's any way they can get him in sooner.  We're on standby.  There's a chance, they may even be able to see him tomorrow.

He felt sooooo good yesterday.  The rash was annoying, but he could deal with that.  Today, he said he feels about as bad as he did last week.

He was hoping to be riding around in his new car today.  :-(

TODAY - Wed, Dec 3

Woke up feeling pretty good, but very tired from restless night

Took the pre-breakfast dose of Medrol and it went downhill from there.  Episodes of vomiting – twice before 10:30am

10:20am - Put on Transderm ear patch and rubbed Prometh on wrists – both for nausea.

Vomited 2 more times before noon

4pm – tried to drink ginger ale.  Vomited again. He said he was tasting medicine.  We took the ear patch back off in case he was reacting to that.

5:30 – started coughing and vomited again

Took a shower and felt relief.  Got out and started feeling bad again.  Waiting a few minutes then got back in the shower.


Night sweats

Tuesday, December 2, 2014

CTCA Call + New Dodge Challenger

First - we got the call from CTCA today.  Our "nurse navigator" is a male and he's a former firefighter for Coweta County and PTC.  He was really nice and talked to Rudy and I for ages.  Rudy felt really good after the call was over.  We'll probably go over and take a tour sometime this week.

ALSO, Before Rudy was diagnosed, he ordered a new vehicle - a Dodge Challenger.   Guess what came today... He is beyond thrilled.    We just got home from picking it up.  He is sooooo happy!